Fifty-eight percent (12,498) of participants are female and 95% (20,541) of European ancestry. After 3 years of recruitment, 21,736 individuals have enrolled. A community advisory board provides ongoing advice and guidance on complex decisions. Each participant completes a health history questionnaire, provides a blood sample, and allows access to existing tissue specimens and all data from their Mayo Clinic electronic medical record. Any Mayo Clinic patient who is 18 years or older, able to consent, and a US resident is eligible to participate. Recruitment, which began in April 2009, is ongoing, with a target goal of 50,000. Preparations for this biobank began with a 4-day Deliberative Community Engagement with local residents to obtain community input into the design and governance of the biobank. To report the design and implementation of the first 3 years of enrollment of the Mayo Clinic Biobank. Olson, Janet E Ryu, Euijung Johnson, Kiley J Koenig, Barbara A Maschke, Karen J Morrisette, Jody A Liebow, Mark Takahashi, Paul Y Fredericksen, Zachary S Sharma, Ruchi G Anderson, Kari S Hathcock, Matthew A Carnahan, Jason A Pathak, Jyotishman Lindor, Noralane M Beebe, Timothy J Thibodeau, Stephen N Cerhan, James R The Mayo Clinic Biobank: a building block for individualized medicine. CONCLUSION The Mayo Clinic Biobank has quickly been established as a valuable resource for researchers. To date, over sixty projects and over 69,000 samples have been approved for use. Fifty-six percent of participants had at least 15 years of EMR history.
VIRGINIA MAYO NIPPLES SKIN
Among self-reported cancer patients, the five most common types were non-melanoma skin cancer (14%), prostate cancer (12% in men), breast cancer (4%), melanoma (3%), and cervical cancer (2% in women).
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The five most commonly self-reported conditions were hyperlipidemia (41%), hypertension (38%), osteoarthritis (30%), any cancer (29%), and gastroesophageal reflux disease (26%). Seventy-four percent lived in Minnesota, 42% from Olmsted County where the Mayo Clinic Rochester is located. Participants were 58% female, 95% of European ancestry, and median age of 62 years. RESULTS After three years of recruitment, 21,736 subjects have enrolled. A Community Advisory Board provides ongoing advice and guidance on complex decisions.
Each participant completes a health history questionnaire, provides a blood sample and allows access to existing tissue specimens and all data from their Mayo Clinic medical record (EMR). Any Mayo Clinic patient who is 18+ years, able to consent, and a US resident is eligible to participate. Recruitment, which began in April 2009, is ongoing with a target goal of 50,000. PATIENTS AND METHODS Preparations for this Biobank began with a 4-day Deliberative Community Engagement with local residents to obtain community input into the design and governance of the biobank. OBJECTIVE To report the design and first three years of enrollment of the Mayo Clinic Biobank. The Mayo Clinic Biobank: A building block for individualized medicine
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